The Dynamic Context & Multiple Challenges of Data Sharing

Research output: Chapter in Book/Report/Conference proceeding › Book chapter › Research › peer-review

Standard

The Dynamic Context & Multiple Challenges of Data Sharing. / Corrales Compagnucci, Marcelo; Fenwick, Mark; Minssen, Timo; Aboy, Mateo.

The Law and Ethics of Data Sharing in Health Sciences. ed. / Marcelo Corrales Compagnucci; Timo Minssen; Mark Fenwick; Mateo Aboy; Kathleen Liddell. Singapore : Springer Nature Singapore, 2024. p. 1-12.

Research output: Chapter in Book/Report/Conference proceeding › Book chapter › Research › peer-review

Harvard

Corrales Compagnucci, M, Fenwick, M, Minssen, T & Aboy, M 2024, The Dynamic Context & Multiple Challenges of Data Sharing. in M Corrales Compagnucci, T Minssen, M Fenwick, M Aboy & K Liddell (eds), The Law and Ethics of Data Sharing in Health Sciences. Springer Nature Singapore, Singapore, pp. 1-12.

APA

Corrales Compagnucci, M., Fenwick, M., Minssen, T., & Aboy, M. (2024). The Dynamic Context & Multiple Challenges of Data Sharing. In M. Corrales Compagnucci, T. Minssen, M. Fenwick, M. Aboy, & K. Liddell (Eds.), The Law and Ethics of Data Sharing in Health Sciences (pp. 1-12). Springer Nature Singapore.

Vancouver

Corrales Compagnucci M, Fenwick M, Minssen T, Aboy M. The Dynamic Context & Multiple Challenges of Data Sharing. In Corrales Compagnucci M, Minssen T, Fenwick M, Aboy M, Liddell K, editors, The Law and Ethics of Data Sharing in Health Sciences. Singapore: Springer Nature Singapore. 2024. p. 1-12

Author

Corrales Compagnucci, Marcelo ; Fenwick, Mark ; Minssen, Timo ; Aboy, Mateo. / The Dynamic Context & Multiple Challenges of Data Sharing. The Law and Ethics of Data Sharing in Health Sciences. editor / Marcelo Corrales Compagnucci ; Timo Minssen ; Mark Fenwick ; Mateo Aboy ; Kathleen Liddell. Singapore : Springer Nature Singapore, 2024. pp. 1-12

Bibtex

@inbook{1783fea67c8e44b6acee857fcc23d8a8,
title = "The Dynamic Context & Multiple Challenges of Data Sharing",
abstract = "This chapter outlines the dynamic context and multiple challenges of data sharing in the contemporary data ecosystem, specifically as it relates to healthcare. Here, we define {\textquoteleft}data sharing{\textquoteright} as the practice of sharing health-related data between a number of data controllers and processors. Data collected in this manner can come from the provision of health, clinical trials, observational studies, public health surveillance programs, and other health data collection methods. Several justifications for such sharing are introduced. Our main contention is that the regulatory environment today is an increasingly complex and rapidly evolving combination of norms and principles. To navigate it successfully requires careful analysis and judgment from all stakeholders across diverse fields of law and technology. The purpose of this volume, therefore, is to offer a series of case studies that integrate theoretical and practical perspectives and illustrate how to effectively navigate this rapidly evolving space.",
author = "{Corrales Compagnucci}, Marcelo and Mark Fenwick and Timo Minssen and Mateo Aboy",
year = "2024",
month = jan,
language = "English",
isbn = "978-981-99-6539-7",
pages = "1--12",
editor = "{Corrales Compagnucci}, Marcelo and Minssen, {Timo } and Mark Fenwick and Mateo Aboy and Kathleen Liddell",
booktitle = "The Law and Ethics of Data Sharing in Health Sciences",
publisher = "Springer Nature Singapore",

}

RIS

TY - CHAP

T1 - The Dynamic Context & Multiple Challenges of Data Sharing

AU - Corrales Compagnucci, Marcelo

AU - Fenwick, Mark

AU - Minssen, Timo

AU - Aboy, Mateo

PY - 2024/1

Y1 - 2024/1

N2 - This chapter outlines the dynamic context and multiple challenges of data sharing in the contemporary data ecosystem, specifically as it relates to healthcare. Here, we define ‘data sharing’ as the practice of sharing health-related data between a number of data controllers and processors. Data collected in this manner can come from the provision of health, clinical trials, observational studies, public health surveillance programs, and other health data collection methods. Several justifications for such sharing are introduced. Our main contention is that the regulatory environment today is an increasingly complex and rapidly evolving combination of norms and principles. To navigate it successfully requires careful analysis and judgment from all stakeholders across diverse fields of law and technology. The purpose of this volume, therefore, is to offer a series of case studies that integrate theoretical and practical perspectives and illustrate how to effectively navigate this rapidly evolving space.

AB - This chapter outlines the dynamic context and multiple challenges of data sharing in the contemporary data ecosystem, specifically as it relates to healthcare. Here, we define ‘data sharing’ as the practice of sharing health-related data between a number of data controllers and processors. Data collected in this manner can come from the provision of health, clinical trials, observational studies, public health surveillance programs, and other health data collection methods. Several justifications for such sharing are introduced. Our main contention is that the regulatory environment today is an increasingly complex and rapidly evolving combination of norms and principles. To navigate it successfully requires careful analysis and judgment from all stakeholders across diverse fields of law and technology. The purpose of this volume, therefore, is to offer a series of case studies that integrate theoretical and practical perspectives and illustrate how to effectively navigate this rapidly evolving space.

M3 - Book chapter

SN - 978-981-99-6539-7

SP - 1

EP - 12

BT - The Law and Ethics of Data Sharing in Health Sciences

A2 - Corrales Compagnucci, Marcelo

A2 - Minssen, Timo

A2 - Fenwick, Mark

A2 - Aboy, Mateo

A2 - Liddell, Kathleen

PB - Springer Nature Singapore

CY - Singapore

ER -

ID: 357181714