Hereditary dysautonomias: Current knowledge and collaborations for the future
Research output: Contribution to journal › Journal article › Research › peer-review
The hereditary dysautonomias (H-Dys) are a large group of disorders that affect the autonomic nervous system. Research in the field of H-Dys is very challenging, because the disorders involve interdisciplinary, integrative, and "mind-body" connections. Recently, medical scientists, NIH/ NINDS representatives, and several patient support groups gathered for the first time in order to discuss recent findings and future directions in the H-Dys field. The H-Dys workshop was instrumental in promoting interactions between basic science and clinical investigators. It also allowed attendees to have an opportunity to meet each other, understand the similarities between the various forms of dysautonomia, and experience the unique perspective offered by patients and their families. Future advances in H-Dys research will depend on a novel multi-system approach by investigators from different medical disciplines, and it is hoped that towards a common goal, novel "bench-to-bedside" therapeutics will be developed to improve the lives of, or even cure, patients suffering from dysautonomic syndromes.
Original language | English |
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Journal | Clinical Autonomic Research |
Volume | 13 |
Issue number | 3 |
Pages (from-to) | 180-195 |
Number of pages | 16 |
ISSN | 0959-9851 |
DOIs | |
Publication status | Published - 2003 |
Externally published | Yes |
Bibliographical note
Funding Information:
■ Acknowledgments We thank the org anizers of the first workshop in dysautonomia for making it a success. Funding for the H-Dys Workshop was provided by the NINDS and the ORD, NIH. We thank Ms. Debra Kulik and Ms. Lee May for their help. We are also g rateful to the Dysautonomia Foundation, Inc., the Familial Dysautonomia Hope Foundation, and the National Dysautonomia Research Foundation for their continued financial support in all areas of dysautonomia research.
- Amyloidosis, Autonomic nervous system, Catecholamine, Neuropathy
Research areas
ID: 331041107