Emilia Niemiec

Emilia Niemiec

Postdoc


  1. Current Ethical Issues Related to the Implementation of Whole-Exome and Whole-Genome Sequencing

    Borry, P., Chokoshvili, D., Niemiec, Emilia, Kalokairinou, L., Vears, D. F. & Howard, H. C., 2015, Movement Disorder Genetics.

    Research output: Chapter in Book/Report/Conference proceedingBook chapterResearch

  2. Published

    Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

    Middleton, A., Milne, R., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L., Jędrzejak, A. & 29 others, Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Wang, N., Nicol, D., Niemiec, Emilia, Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., West, A. V., Yoshizawa, G. & Morley, K. I., 1 Oct 2020, In: American Journal of Human Genetics. 107, 4, p. 743-752 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Published

    Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

    on behalf of the Participant Values Work Stream of the Global Alliance for Genomics and Health, O. B. O. T. P. V. W. S. O. T. G. A. F. G. A. H., 1 Apr 2020, In: European Journal of Human Genetics. 28, 4, p. 424-434 11 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  4. Published

    'Your DNA, Your Say': Global survey gathering attitudes toward genomics: Design, delivery and methods

    Middleton, A., Niemiec, E., Prainsack, B., Bobe, J., Farley, L., Steed, C., Smith, J., Bevan, P., Bonhomme, N., Kleiderman, E., Thorogood, A., Schickhardt, C., Garattini, C., Vears, D., Littler, K., Banner, N., Scott, E., Kovalevskaya, N. V., Levin, E., Morley, K. I. & 1 others, Howard, H. C., 2018, In: Personalized Medicine. 15, 4, p. 311-318 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  5. Published

    Attitudes of publics who are unwilling to donate DNA data for research

    Middleton, A., Milne, R., Thorogood, A., Kleiderman, E., Niemiec, Emilia, Prainsack, B., Farley, L., Bevan, P., Steed, C., Smith, J., Vears, D., Atutornu, J., Howard, H. C. & Morley, K. I., May 2019, In: European Journal of Medical Genetics. 62, 5, p. 316-323 8 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  6. Published

    Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

    on behalf of the Participant Values Work Stream of the Global Alliance for Genomics and Health, O. B. O. T. P. V. W. S. O. T. G. A. F. G. A. H., 1 Dec 2019, In: Human Genetics. 138, 11-12, p. 1237-1246 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  7. Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

    Milne, R., Morley, K. I., Almarri, M. A., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Feijao, C., de Freitas, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain Sheikh, Z., Malmgren, C. I., Izhevskaya, V. L. & 27 others, Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, Emilia, Patch, C., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., Wang, N., Yoshizawa, G. & Middleton, A., May 2022, In: Genetics in Medicine. 24, 5, p. 1120-1129 10 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  8. Published

    Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

    Milne, R., Morley, K. I., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L. & 30 others, Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, Emilia, Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., Wang, N., West, A. V., Yoshizawa, G. & Middleton, A., Dec 2021, In: Genome Medicine. 13, 1, 92.

    Research output: Contribution to journalJournal articleResearchpeer-review

  9. Published

    Germline Genome Editing Research: What Are Gamete Donors (Not) Informed about in Consent Forms?

    Niemiec, Emilia & Howard, H. C., Feb 2020, In: CRISPR Journal. 3, 1, p. 52-63 12 p.

    Research output: Contribution to journalJournal articleResearchpeer-review

  10. Published

    Current ethical and legal issues in health-related direct-to-consumer genetic testing

    Niemiec, Emilia, Kalokairinou, L. & Howard, H. C., Sep 2017, In: Personalized Medicine. 14, 5, p. 433-445 13 p.

    Research output: Contribution to journalReviewResearchpeer-review

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