TY - JOUR

T1 - Regulating Patient Access to Therapeutics in Denmark

T2 - a Rhetorical Analysis of Welfare Imaginaries in Public Controversy

AU - Møllebæk, Mathias

PY - 2021

Y1 - 2021

N2 - In this article, I argue that the social imaginaries that inform biomedical regulation circulate not only in technical spheres populated by experts but that they are equally articulated (and vehemently contested) in national public spheres in more popular forms of communication. I examine the relation between a national healthcare imaginary and the regulation of therapeutics through a public controversy about access to an innovative therapeutic indicated for spinal muscular atrophy. The establishment of the Danish Medicines Council, a new health technology assessment institution, and its decision to restrict access to an innovative therapeutic sparked controversy in 2017 involving political proponents, adversaries, and patients among others. In a variety of ways they rhetorically mobilized or contested the Danish universalist welfare imaginary which contains promises and prospects of solidarity, security and absence of market forces in universal healthcare, including access to therapeutics. I use a combination of media content analysis and rhetorical close-reading methods to analyze how the imaginary was drawn upon in arguments for and against the new regulatory institution.

AB - In this article, I argue that the social imaginaries that inform biomedical regulation circulate not only in technical spheres populated by experts but that they are equally articulated (and vehemently contested) in national public spheres in more popular forms of communication. I examine the relation between a national healthcare imaginary and the regulation of therapeutics through a public controversy about access to an innovative therapeutic indicated for spinal muscular atrophy. The establishment of the Danish Medicines Council, a new health technology assessment institution, and its decision to restrict access to an innovative therapeutic sparked controversy in 2017 involving political proponents, adversaries, and patients among others. In a variety of ways they rhetorically mobilized or contested the Danish universalist welfare imaginary which contains promises and prospects of solidarity, security and absence of market forces in universal healthcare, including access to therapeutics. I use a combination of media content analysis and rhetorical close-reading methods to analyze how the imaginary was drawn upon in arguments for and against the new regulatory institution.

U2 - 10.1093/jlb/lsaa047

DO - 10.1093/jlb/lsaa047

M3 - Journal article

C2 - 34408897

VL - 8

JO - Journal of Law and the Biosciences

JF - Journal of Law and the Biosciences

SN - 2053-9711

IS - 2

M1 - Isaa047

ER -