Establishing the First International Genetic Discrimination Observatory

Research output: Contribution to journal › Journal article › Research › peer-review

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Establishing the First International Genetic Discrimination Observatory. / Joly, Yann; Dalpe, Gratien ; Minssen, Timo; Ó Cathaoir, Katharina; De Paor, Aisling ; Granados Moreno, Palmira; Dove, Edward ; Van Hoyweghen, Ine ; Ho, Chih-hsing; Ho, Calvin WL; Kim, Hannah; Song, Lingqiao; Otlowski, Margaret; Prince, Anya; van Hoyweghen, Ine; Voigt, TH; Thiraps, A; Pilar, Maria; BEVIERE BOYER, Bénédicte ; ?, Kato; Yamasaki, Chisato ; Bombard, Yvonne ; Dupras, Charles .

In: Nature Genetics, Vol. 52, 23.03.2020, p. 466-468.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Joly, Y, Dalpe, G, Minssen, T, Ó Cathaoir, K, De Paor, A, Granados Moreno, P, Dove, E, Van Hoyweghen, I, Ho, C, Ho, CWL, Kim, H, Song, L, Otlowski, M, Prince, A, van Hoyweghen, I, Voigt, TH, Thiraps, A, Pilar, M, BEVIERE BOYER, B, ?, K, Yamasaki, C, Bombard, Y & Dupras, C 2020, 'Establishing the First International Genetic Discrimination Observatory', Nature Genetics, vol. 52, pp. 466-468. https://doi.org/10.1038/s41588-020-0606-5

APA

Joly, Y., Dalpe, G., Minssen, T., Ó Cathaoir, K., De Paor, A., Granados Moreno, P., Dove, E., Van Hoyweghen, I., Ho, C., Ho, C. WL., Kim, H., Song, L., Otlowski, M., Prince, A., van Hoyweghen, I., Voigt, TH., Thiraps, A., Pilar, M., BEVIERE BOYER, B., ... Dupras, C. (2020). Establishing the First International Genetic Discrimination Observatory. Nature Genetics, 52, 466-468. https://doi.org/10.1038/s41588-020-0606-5

Vancouver

Joly Y, Dalpe G, Minssen T, Ó Cathaoir K, De Paor A, Granados Moreno P et al. Establishing the First International Genetic Discrimination Observatory. Nature Genetics. 2020 Mar 23;52:466-468. https://doi.org/10.1038/s41588-020-0606-5

Author

Joly, Yann ; Dalpe, Gratien ; Minssen, Timo ; Ó Cathaoir, Katharina ; De Paor, Aisling ; Granados Moreno, Palmira ; Dove, Edward ; Van Hoyweghen, Ine ; Ho, Chih-hsing ; Ho, Calvin WL ; Kim, Hannah ; Song, Lingqiao ; Otlowski, Margaret ; Prince, Anya ; van Hoyweghen, Ine ; Voigt, TH ; Thiraps, A ; Pilar, Maria ; BEVIERE BOYER, Bénédicte ; ?, Kato ; Yamasaki, Chisato ; Bombard, Yvonne ; Dupras, Charles . / Establishing the First International Genetic Discrimination Observatory. In: Nature Genetics. 2020 ; Vol. 52. pp. 466-468.

Bibtex

@article{4fb0796c634d4df4bcd416660096b383,
title = "Establishing the First International Genetic Discrimination Observatory",
abstract = "Over twenty years after the Universal Declaration on the Human Genome and Human Rights alerted the international community of the need to prevent discriminatory use of genetic information, it still remains a pervasive issue. Legal efforts to address genetic discrimination (GD) solely at the national level are unlikely to resolve a problem that now transcends national frontiers. People should have the opportunity to avail themselves from novel genetic and computational biology technologies without fear of GD. To address the situation, we propose and initiate an international Genetic Discrimination Observatory (GDO) that involves a dynamic virtual network of researchers and stakeholders from over 19 jurisdictions. The GDO will produce information, tools and policy models to help assess and prevent GD. Some of these outputs are already available on the GDO website (https://gdo.global/en/gdo-description). In this paper we outline the reason and describe the basic features of this timely initiative.",
author = "Yann Joly and Gratien Dalpe and Timo Minssen and {{\'O} Cathaoir}, Katharina and {De Paor}, Aisling and {Granados Moreno}, Palmira and Edward Dove and {Van Hoyweghen}, Ine and Chih-hsing Ho and Ho, {Calvin WL} and Hannah Kim and Lingqiao Song and Margaret Otlowski and Anya Prince and {van Hoyweghen}, Ine and TH Voigt and A Thiraps and Maria Pilar and {BEVIERE BOYER}, B{\'e}n{\'e}dicte and Kato ? and Chisato Yamasaki and Yvonne Bombard and Charles Dupras",
year = "2020",
month = mar,
day = "23",
doi = "10.1038/s41588-020-0606-5",
language = "English",
volume = "52",
pages = "466--468",
journal = "Nature Genetics",
issn = "1061-4036",
publisher = "nature publishing group",

}

RIS

TY - JOUR

T1 - Establishing the First International Genetic Discrimination Observatory

AU - Joly, Yann

AU - Dalpe, Gratien

AU - Minssen, Timo

AU - Ó Cathaoir, Katharina

AU - De Paor, Aisling

AU - Granados Moreno, Palmira

AU - Dove, Edward

AU - Van Hoyweghen, Ine

AU - Ho, Chih-hsing

AU - Ho, Calvin WL

AU - Kim, Hannah

AU - Song, Lingqiao

AU - Otlowski, Margaret

AU - Prince, Anya

AU - van Hoyweghen, Ine

AU - Voigt, TH

AU - Thiraps, A

AU - Pilar, Maria

AU - BEVIERE BOYER, Bénédicte

AU - ?, Kato

AU - Yamasaki, Chisato

AU - Bombard, Yvonne

AU - Dupras, Charles

PY - 2020/3/23

Y1 - 2020/3/23

N2 - Over twenty years after the Universal Declaration on the Human Genome and Human Rights alerted the international community of the need to prevent discriminatory use of genetic information, it still remains a pervasive issue. Legal efforts to address genetic discrimination (GD) solely at the national level are unlikely to resolve a problem that now transcends national frontiers. People should have the opportunity to avail themselves from novel genetic and computational biology technologies without fear of GD. To address the situation, we propose and initiate an international Genetic Discrimination Observatory (GDO) that involves a dynamic virtual network of researchers and stakeholders from over 19 jurisdictions. The GDO will produce information, tools and policy models to help assess and prevent GD. Some of these outputs are already available on the GDO website (https://gdo.global/en/gdo-description). In this paper we outline the reason and describe the basic features of this timely initiative.

AB - Over twenty years after the Universal Declaration on the Human Genome and Human Rights alerted the international community of the need to prevent discriminatory use of genetic information, it still remains a pervasive issue. Legal efforts to address genetic discrimination (GD) solely at the national level are unlikely to resolve a problem that now transcends national frontiers. People should have the opportunity to avail themselves from novel genetic and computational biology technologies without fear of GD. To address the situation, we propose and initiate an international Genetic Discrimination Observatory (GDO) that involves a dynamic virtual network of researchers and stakeholders from over 19 jurisdictions. The GDO will produce information, tools and policy models to help assess and prevent GD. Some of these outputs are already available on the GDO website (https://gdo.global/en/gdo-description). In this paper we outline the reason and describe the basic features of this timely initiative.

U2 - 10.1038/s41588-020-0606-5

DO - 10.1038/s41588-020-0606-5

M3 - Journal article

C2 - 32203466

VL - 52

SP - 466

EP - 468

JO - Nature Genetics

JF - Nature Genetics

SN - 1061-4036

ER -

ID: 230563266