The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination

Research output: Contribution to journal › Journal article › Research › peer-review

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The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination. / Joly, Yann; Huerne, Katherine; Arych, Mykhailo ; Bombard, Yvonne ; Dove, Edward ; Granados Moreno, Palmira; Ho, Chih-hsing; Van Hoyweghen, Ine ; Kim, Hannah; Lebret, Audrey; Minssen, Timo; Ó Cathaoir, Katharina; Prince, Anya; Otlowski, Margret; Pepper, Michael S; Sladek, Rob; Song, Lingqiao; Voight, Torsten ; Zawati, Ma’n H ; Dalpe, Gratien .

In: Trends in Genetics, Vol. 37, No. 11, 06.09.2021, p. 951-954.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Joly, Y, Huerne, K, Arych, M, Bombard, Y, Dove, E, Granados Moreno, P, Ho, C, Van Hoyweghen, I, Kim, H, Lebret, A, Minssen, T, Ó Cathaoir, K, Prince, A, Otlowski, M, Pepper, MS, Sladek, R, Song, L, Voight, T, Zawati, MH & Dalpe, G 2021, 'The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination', Trends in Genetics, vol. 37, no. 11, pp. 951-954. https://doi.org/10.1016/j.tig.2021.08.004

APA

Joly, Y., Huerne, K., Arych, M., Bombard, Y., Dove, E., Granados Moreno, P., Ho, C., Van Hoyweghen, I., Kim, H., Lebret, A., Minssen, T., Ó Cathaoir, K., Prince, A., Otlowski, M., Pepper, M. S., Sladek, R., Song, L., Voight, T., Zawati, M. H., & Dalpe, G. (2021). The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination. Trends in Genetics, 37(11), 951-954. https://doi.org/10.1016/j.tig.2021.08.004

Vancouver

Joly Y, Huerne K, Arych M, Bombard Y, Dove E, Granados Moreno P et al. The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination. Trends in Genetics. 2021 Sep 6;37(11):951-954. https://doi.org/10.1016/j.tig.2021.08.004

Author

Joly, Yann ; Huerne, Katherine ; Arych, Mykhailo ; Bombard, Yvonne ; Dove, Edward ; Granados Moreno, Palmira ; Ho, Chih-hsing ; Van Hoyweghen, Ine ; Kim, Hannah ; Lebret, Audrey ; Minssen, Timo ; Ó Cathaoir, Katharina ; Prince, Anya ; Otlowski, Margret ; Pepper, Michael S ; Sladek, Rob ; Song, Lingqiao ; Voight, Torsten ; Zawati, Ma’n H ; Dalpe, Gratien . / The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination. In: Trends in Genetics. 2021 ; Vol. 37, No. 11. pp. 951-954.

Bibtex

@article{a6b69c0de37e46eb85e2c94c28df3ced,
title = "The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination",
abstract = "Genetic discrimination can be defined as the differential, negative, treatment or unfair profiling of an individual based on presumed or actual genetic characteristics or on omics data. In the face of rapidly developing omics and data-driven technologies, coordinated actions need to be undertaken by stakeholders to document and address adverse consequences of technical advances and the genetic revolution. This article aims to inform the community about an international organization developed to address genetic discrimination, the Genetic Discrimination Observatory (GDO), and developments that have occurred since its international launch in late 2020. These developments indicate that genetic discrimination can take many forms and happen in multiple contexts in today{\textquoteright}s rapidly evolving scientific and social environment. The need for an international organisation such as the GDO to inform the community and respond to these developments becomes crucial in this context.",
keywords = "Faculty of Law, genetics, regulation, discrimination, law, human rights, access, justice, fairness",
author = "Yann Joly and Katherine Huerne and Mykhailo Arych and Yvonne Bombard and Edward Dove and {Granados Moreno}, Palmira and Chih-hsing Ho and {Van Hoyweghen}, Ine and Hannah Kim and Audrey Lebret and Timo Minssen and {{\'O} Cathaoir}, Katharina and Anya Prince and Margret Otlowski and Pepper, {Michael S} and Rob Sladek and Lingqiao Song and Torsten Voight and Zawati, {Ma{\textquoteright}n H} and Gratien Dalpe",
year = "2021",
month = sep,
day = "6",
doi = "10.1016/j.tig.2021.08.004",
language = "English",
volume = "37",
pages = "951--954",
journal = "Trends in Genetics",
issn = "0168-9525",
publisher = "Elsevier Ltd. * Trends Journals",
number = "11",

}

RIS

TY - JOUR

T1 - The Genetic Discrimination Observatory: Confronting Novel Issues in Genetic Discrimination

AU - Joly, Yann

AU - Huerne, Katherine

AU - Arych, Mykhailo

AU - Bombard, Yvonne

AU - Dove, Edward

AU - Granados Moreno, Palmira

AU - Ho, Chih-hsing

AU - Van Hoyweghen, Ine

AU - Kim, Hannah

AU - Lebret, Audrey

AU - Minssen, Timo

AU - Ó Cathaoir, Katharina

AU - Prince, Anya

AU - Otlowski, Margret

AU - Pepper, Michael S

AU - Sladek, Rob

AU - Song, Lingqiao

AU - Voight, Torsten

AU - Zawati, Ma’n H

AU - Dalpe, Gratien

PY - 2021/9/6

Y1 - 2021/9/6

N2 - Genetic discrimination can be defined as the differential, negative, treatment or unfair profiling of an individual based on presumed or actual genetic characteristics or on omics data. In the face of rapidly developing omics and data-driven technologies, coordinated actions need to be undertaken by stakeholders to document and address adverse consequences of technical advances and the genetic revolution. This article aims to inform the community about an international organization developed to address genetic discrimination, the Genetic Discrimination Observatory (GDO), and developments that have occurred since its international launch in late 2020. These developments indicate that genetic discrimination can take many forms and happen in multiple contexts in today’s rapidly evolving scientific and social environment. The need for an international organisation such as the GDO to inform the community and respond to these developments becomes crucial in this context.

AB - Genetic discrimination can be defined as the differential, negative, treatment or unfair profiling of an individual based on presumed or actual genetic characteristics or on omics data. In the face of rapidly developing omics and data-driven technologies, coordinated actions need to be undertaken by stakeholders to document and address adverse consequences of technical advances and the genetic revolution. This article aims to inform the community about an international organization developed to address genetic discrimination, the Genetic Discrimination Observatory (GDO), and developments that have occurred since its international launch in late 2020. These developments indicate that genetic discrimination can take many forms and happen in multiple contexts in today’s rapidly evolving scientific and social environment. The need for an international organisation such as the GDO to inform the community and respond to these developments becomes crucial in this context.

KW - Faculty of Law

KW - genetics

KW - regulation

KW - discrimination

KW - law

KW - human rights

KW - access

KW - justice

KW - fairness

U2 - 10.1016/j.tig.2021.08.004

DO - 10.1016/j.tig.2021.08.004

M3 - Journal article

C2 - 34503867

VL - 37

SP - 951

EP - 954

JO - Trends in Genetics

JF - Trends in Genetics

SN - 0168-9525

IS - 11

ER -

ID: 275430292