CECS seminar with Barbara Prainsack – University of Copenhagen

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CECS seminar with Barbara Prainsack

Resisting the iLeviathan: A solidarity-based approach to data governance

Clarifying the role and status of digital data in our societies is one of the most pressing challenges in our societies. How we determine the role and status of digital data affects virtually every policy field as well as the organisation of our political economy as a whole. To do so requires the rethinking (a) the ontological and legal status of digital data, and (b) appropriate governance regimes and instruments.

Drawing on the concept of solidarity I propose that we need a stronger emphasis on collective forms of control and ownership of data. This entails the establishment of digital data commons (and corresponding governance frameworks) wherever possible, as well as well as a regulatory approach that focuses on the purposes of data use, not on the assumed properties of data types, when classifying risk and imposing duties and protections. In addition, the law should pay systematic attention to whether or not data use aims at creating public value, and treat data uses that aim at creating public value differently from those that do not. Last but not least, in the era of data mining and predictive analytics we need new and more effective instruments for harm mitigation.

Programme:

  • Introduction – Chair/Helle Krunke, Professor of Consitutional Law, Faculty of Law, University of Copenhagen
  • ”Resisting the iLeviathan: A solidarity-based approach to data governance” by Barbara Prainsack, professor and director at the Centre for the Study of Contemporary Solidarity (CeSCoS), Department of Political Science, University of Vienna
  • Plenary Discussion: Q & A Session

Bio:

Barbara is a professor and director at the Centre for the Study of Contemporary Solidarity (CeSCoS), Department of Political Science, University of Vienna and a professor at the Department of Global Health & Social Medicine at King's College London. Her work explores the social, ethical, and regulatory dimensions of genetic and data-driven practices and technologies in biomedicine and forensics. Barbara is currently a member of the National Bioethics Commission in Austria, and a member of the European Group on Ethics of Science and New Technologies advising the European Commission. Her latest books are: Personalized Medicine: Empowered Patients in the 21st Century? (New York University Press, 2017), and Solidarity in Biomedicine and Beyond (with A. Buyx, Cambridge University Press, 2016). 

The seminar is part of a CECS seminar series on Constitutional Dimensions in the Digital era.

Registration

For participation in the seminar please use this registration form no later than 25 April 2019, 12:00.